Nearly another month and still not doing well.
Jeremy is slowly (very slowly) seeing improvements with the twice daily nasal rinsing using oregano oil, salt, baking soda, and water. The glutathione nasal spray is also helping to heal his sinus infection. Its very slow improvement, a little more energy some days and a small bit more functional, but any improvement is good.
I too saw some improvement off and on this last month but then last week started to take a quick turn for the worse again. My small bits of energy have all but disappeared, daily sinus headaches again, lots of full body nerve pain, low grade fevers, sinuses swelling more each day, and a few other returning symptoms.
Called the doctor again yesterday – we agreed its time for antibiotics. Some who read this blog may wonder why we waited on them instead of going the more normal route here in America and jumping right to a 4-6 week antibiotic course.
When popping a pill for treatment, the medication does not go only to the spot needed. Instead it hits the intestinal track where it is then absorbed into the blood stream through the intestinal lining. There are a few problems with this plan when dealing with an infection at a spot of the body which does not receive as much blood flow as for example, the lungs do.
If the infected area does not have a high blood flow then the amount of medicine it receives will be much smaller and healing will be slower because of this. Also with antibiotics, taking them orally means they do a lot of damage to your intestinal flora. The human body is very dependent on the flora and fauna in our digestion tracks to aid in digesting food and helping our immune system keep bad things in check – like candida yeast.
When one takes an antibiotic, its not only killing the problem you take it for but also our cohabitants inside of us – basically going on a killing spree directed at an important part of your immune system while at the same time throwing a kegger party for the nasties.
I am going to be taking a slightly different approach with my antibiotics, a much safer approach considering the location. Instead of taking a pill a few times a day, I will be using a gizmo which turns the specially made antibiotic into a mist and is then breathed in through the nose via a nasal nebulizer. This greatly isolates the area being treated and will keep a vast majority of the medicine right where it is needed – my sinus passages.
It will still be a course of treatment lasting 4 weeks but the impact it will have on my overall health will be minimal compared to the bottle of pills you pick up at the local pharmacy.
In addition to this, I will begin using an antibiotic ointment for my nose tonight and continue this for about five days. As well, when all the antibiotics are done I will start a long treatment of an antifungal also with the nebulizer. This part of the treatment is expected to take a minimum of 4 weeks but very likely a while longer as the fungal part of the infection is much more stubborn than the bacterial.
Sadly, the antibiotic treatment will aid the fungal infection’s growth (just as it would in the gut with candida) by killing the good bacteria in my sinuses along with the bad, and is the reason for the aggressive antifungal use after the antibiotics.
It is very tiring to think I’ve had variations of this infection since very early March and am just starting a new course of treatment promising to last a minimum of two more months.
I suspect my initial sinus infection in March was bacterial and mostly (or even entirely) cleared up via natural methods. Then the mold levels rose dramatically in the environment around me in April when the weather warmed and became very wet, which quickly allowed a mold infection to begin in my still recovering sinuses. Then with enough time and my immune system being very worn out, another bacterial infection was able to take hold in the last couple of weeks while I was successfully treating the fungal/mold infection.
Hopefully hitting these infections hard with these antibiotics and stronger antifungals will do the trick, letting me again start to have more energy and finally feel better.
Had another phone appointment yesterday with Dr. Buscher our CFS/MCS specialist. Seemed time to consult him since Jeremy and I had tried everything we could think of doing on our own but to no avail.
It didn’t take Dr. Buscher long to figure out what is very likely happening to us. This year has seen a particularly wet and warm winter/spring which has mold numbers very high. In people with low health, mold can actually take residence in your sinuses and other parts of the body. This leads to all kinds of trouble.
The molds release toxins and then these toxins are in you. No having to inhale them in a sick building or ways to prevent exposure – its already inside. Add to this a bodily reaction to the mold infection taking root in you and causing your immune system to ramp up – inflammation, swollen glands, low fevers, brain fog, memory problems, greater fatigue than normal, and body aches all abound.
We had a mold sinus infection for several months in 2006 and in comparing symptoms it is nearly exact to what we are going through now.
He has us rinsing our sinuses twice a day with oregano oil very diluted which wowie does it burn. This should pass as the sinus tissue begins to heal with the lessening of the infection.
We will also be starting a nasal glutathione spray soon as I can get it made/shipped from the compounding pharmacy as its not something you’ll find at the local drug store.
Dr. Buscher said we should be having noticeable improvements within 2-3 weeks. Fingers crossed!
Its such a relief to have an avenue of recovery planned.
Words hardly express how frightening and overwhelming it can be to see the fragile strings of your life snapping one by one while you are desperately trying to stop your life from dissolving more each day.