Almost a year has passed since my last post here, yet I am disappointed with my lack of posting at the second blog site Jeremy and I teamed up for. In truth, though he is a great partner for many things, blog writing is not one of them. This sapped my enthusiasm for writing and over the months turned into more silence than anything. In that time, much has happened, but what brings me back here today is this blog itself. Several weeks ago I began to reread my old posts here and appreciate once more how much Sundog Tales has always meant to me. I’ve shared so much of my journey, it’s only fitting that I come back here in these final months before I begin to attend Colorado State University in August.
Where does one begin? Perhaps there is no need for a beginning, for you already know me so well. A quick catch-up then.
In short, life in Colorado has been filled with many ups and downs, as any life is – healthy or chronically ill, and I’ve been undergoing tremendous growth to overcome these challenges. I’ve had the excitement of applying for and being accepted to CSU for the fall semester. This in turn kicked off a world of doubts and fears about my capabilities to return to school, being productive once more, and in some ways more importantly – to feel successful while doing it.
All those years living in a tent, day dreaming of being healthy again, working or going back to school – the reality is both much more fantastic and also more difficult that I had imagined. Somehow in each of my daydreams, the me I would become when well was the same me I had been before becoming sick. Other than knowing I was mentally a lot stronger and physically a lot weaker now, in my mind’s eye I was still the same 24 year old woman I used to be.
Boy was I wrong!
I am vastly different than who I had been. Though the tent felt like time was suspended within it’s walls, it was in fact not a time machine at all, waiting to deposit the old me 13 years in the future the same as I’d been before, but instead a device slowly molding me into a more mature and motivated person.
This is ever so obvious when I attend functions at CSU, surrounded by undergrads who are often half my age with problems I no longer identify with, such as which party to go to or who is dating whom. Worse yet are the functions for incoming freshmen and transfer students. The freshmen are often accompanied by parents who are the only ones asking questions, a glazed look on the kid’s faces, and everyone wondering where the dorms are. These are not problems in my world. My world is about paying rent, walking the dog, spending time with Jeremy, and otherwise devoting myself to my studies.
No, the me of 2001 who would have been only a bit older than these kids is as surely gone in the past as VHS tapes and a world without cell phones.
This morning I was writing an essay for a scholarship (something else past me had never done) and one of the questions was on how have I grown as a leader through my leadership activities. Well, as someone who was bedbound much of the last decade of my life, let me tell you – there wasn’t much call for leadership activities. Then I woke this morning with the thought on my mind, this right here is a leadership activity. I have reached lives I have never known, inspired people with my words to be more than they were before reading my stories, and that to me is a leader.
It reminded me of how much this blog and all my readers have meant to me over the years and I realized that at one of the greatest points in the story – I left. I went elsewhere and was hardly there too. It’s time I remedy this and finish this story, you all deserve nothing less.
So pull up a chair and settle in, because there will be more blog posts to come over the next few months as we count down to the first day of school – August 25, 2014.
I’ve been down and out of life for the last couple of months, mostly because Tashi has been waking us up multiple times a night since mid-February. She’s a wonderful cat in all other ways, but sadly she has trouble with being afraid of things in our home environment which we have zero control over.
The main trigger for her nightly wake-ups seems to be our neighbor’s voice coming in through our windows at all hours of the night. I don’t blame the neighbor, she works until midnight and we knew that before moving in. Everything is at a normal speaking volume, she’s just awake much of the night. We’ve worked far too many lousy jobs that require that sort of shift to complain about someone else who’s working that shift and simply unwinding at night by chatting with their boyfriend.
And so we’ve found Tashi a new home. It’s a good home and she will be moving there at the end of this week. There are 3 other cats and a dog, along with some nice folks. A much bigger home, more windows for her, and most importantly – neighbors who’s windows are much further than 5 feet away.
I’ll be very sorry to see her go. I haven’t posted much about her here, but she’s been a real highlight in our lives these last 6 months. Were it not for this constant lack of sleep and what it’s done to our health (a full stop on our healing progress for CFS and some regression), it would be a great joy to keep her with us.
However it seems to have come down to staying tired and feeling useless in life or keeping a wonderful cat – oddly it was a hard choice. But then being tired and feeling useless is actually what most of life felt like since becoming ill in 2001 – it’s only recently begun to change at the end of last year so I’m not as familiar with what that feels like anymore.
What I do remember of December (2012) and January (2013) was a great deal of delight in feeling my energy coming up, actually being able to see and feel life returning to a more normal picture, and being happy that my existence isn’t dictated solely by feelings of Chronic Fatigue Syndrome and Multiple Chemical Sensitives. Thankfully, I’m still seeing MCS improvements, even just yesterday going into a store (Costco) that we had to avoid in the past like the plague due to all the odors and such. Now it was just as I remembered it from when I went as a kid with my mom on shopping day – everything smelled just the same, not overwhelming or frightening. Life with MCS really is coming to a close and it’s both a brilliant and wonderful thing.
I know this can happen with CFS too and unfortunately its all too clear that right now that means as best of sleep as we can manage so our nervous systems can calm down instead of being jarred awake several times a night. Truly, Tashi is going to a great home with one of the worker’s at the cat sanctuary we adopted her from – actually the woman who helped us pick her out. The woman had always wanted Tashi, seemed a little sad to see her go, but had not wanted to make the commitment before. She’s had a change of mind now that she’s seen just how wonderful and loving Tashi is as a house cat – they’ll do well together I think.
Hopefully in a few weeks time Jeremy and I will be seeing more energy again. Neither of us can hardly wait for the adventures on our horizon and have lots of motivation to make them happen. Brighter days should be coming our way, even if they are a little more lonely without my dear Tashi.
Have you ever been to a nude beach? I went to my first one today!
Little Beach is part of the Makena State Park and known for being clothing optional, as well as it’s Sunday night drum parties. It’s a very nice little cove at the end of a quarter mile hike. The snorkeling wasn’t spectacular, however we saw some fish we’ve never seen before – including a small school of fish probably each the size of a large dog. As well, several sea turtles made the whole trip very worthwhile.
Yet, we didn’t go to Little Beach for the snorkeling – we went for the whales. Humpback whales migrate here each winter from December through April. According to my research, Little Beach would be just about the best place from shore to watch them passing by. Shortly after we arrived we were greeted with an amazing site. Two adult humpback whales only a few hundred feet off the shore, swimming along and doing their own thing. Though we didn’t see much more than their back spines each time they came to the surface, it was a fantastic site that brought tears to my eyes.
I mean, how fantastic is it to have seen something like that so close in the wild?
I wasn’t on a boat with dozens of other tourists or some other modern means to be out on the water with them. No, I was just standing on the shore of a beach I’d hiked out to and seeing them as I am, a human on land, and as they are, majestic beauty in the ocean. Absolutely one of the most amazing things I’ve seen in my life.
This isn’t the first time I’ve seen whales, not even here on Maui – just something about them being so close I felt like I could nearly touch them… wonderful.
Have you ever wondered what whale songs are like in the wild?
Sometimes when you snorkel here during the winter you can hear them signing to each other underwater. This is the second time I’ve been lucky to hear them. Today they were loud enough to be easily heard, even over the white noise of the choppy waves we were snorkeling in. It was very magical, especially the times when we’d find a turtle to swim with. Whales whistling and calling to one another, following a sea turtle as it wandered the reef, scores of brightly colored fish swimming below us – I’ll always remember this.
I found myself at one point being struck by how diametrically different my life is now compared to March in Washington while living in a tent. Almost every year the last snow of the season would be sometime in the next two weeks. We’d be completely and totally exhausted from surviving another freezing and snowy winter only to look forward to a ridiculous amount of rain for the next two months, praying this summer would be warm and sunny. Often times it would be a wet summer too with nary a good, hot day to burn off winter’s chill before turning into Autumn and starting the cycle all over.
Instead, here I was snorkeling nude in the ocean, warm sunshine on my backside, while swimming with whales and turtles!
If life can change so dramatically for me in such a short period of time, just think of what else I can do. I am getting healthy again, there is no doubt about that, and sometimes like today I can really feel just how possible it is to change my situation for the better. It has taken an enormous amount of hard work and tenacity, but just look at where I am now!
I used to feel like I could inspire others to follow their dreams, grow as individuals, and reach places they thought were too distant – but sadly, I couldn’t do that for myself. Now I look at how life has changed me…I can be my own inspiration and reach my own dreams.
If I were to be able to speak to the illness that has stolen so many years of my life, I would have to quote one of my favorite movies – “Through dangers untold and hardships unnumbered, I have fought my way here to the castle beyond the Goblin City to take back the (life) that you have stolen, for my will is as strong as yours, and my kingdom as great — You have no power over me.”
Sorry for the long delay in posts. The process of finding safe housing is proving to be most difficult and has caused a marked decline in health. Jeremy and I are making it by as always with a smile in our hearts and hope in our eyes. With some luck, we’ll find a new place to live soon that is a healing environment and with considerably less stress than our current apartment.
Sundog Tales will most certainly be continuing just as soon as I’ve the oomph for more adventures! Hugs to all! Lisa