Almost a year has passed since my last post here, yet I am disappointed with my lack of posting at the second blog site Jeremy and I teamed up for. In truth, though he is a great partner for many things, blog writing is not one of them. This sapped my enthusiasm for writing and over the months turned into more silence than anything. In that time, much has happened, but what brings me back here today is this blog itself. Several weeks ago I began to reread my old posts here and appreciate once more how much Sundog Tales has always meant to me. I’ve shared so much of my journey, it’s only fitting that I come back here in these final months before I begin to attend Colorado State University in August.
Where does one begin? Perhaps there is no need for a beginning, for you already know me so well. A quick catch-up then.
In short, life in Colorado has been filled with many ups and downs, as any life is – healthy or chronically ill, and I’ve been undergoing tremendous growth to overcome these challenges. I’ve had the excitement of applying for and being accepted to CSU for the fall semester. This in turn kicked off a world of doubts and fears about my capabilities to return to school, being productive once more, and in some ways more importantly – to feel successful while doing it.
All those years living in a tent, day dreaming of being healthy again, working or going back to school – the reality is both much more fantastic and also more difficult that I had imagined. Somehow in each of my daydreams, the me I would become when well was the same me I had been before becoming sick. Other than knowing I was mentally a lot stronger and physically a lot weaker now, in my mind’s eye I was still the same 24 year old woman I used to be.
Boy was I wrong!
I am vastly different than who I had been. Though the tent felt like time was suspended within it’s walls, it was in fact not a time machine at all, waiting to deposit the old me 13 years in the future the same as I’d been before, but instead a device slowly molding me into a more mature and motivated person.
This is ever so obvious when I attend functions at CSU, surrounded by undergrads who are often half my age with problems I no longer identify with, such as which party to go to or who is dating whom. Worse yet are the functions for incoming freshmen and transfer students. The freshmen are often accompanied by parents who are the only ones asking questions, a glazed look on the kid’s faces, and everyone wondering where the dorms are. These are not problems in my world. My world is about paying rent, walking the dog, spending time with Jeremy, and otherwise devoting myself to my studies.
No, the me of 2001 who would have been only a bit older than these kids is as surely gone in the past as VHS tapes and a world without cell phones.
This morning I was writing an essay for a scholarship (something else past me had never done) and one of the questions was on how have I grown as a leader through my leadership activities. Well, as someone who was bedbound much of the last decade of my life, let me tell you – there wasn’t much call for leadership activities. Then I woke this morning with the thought on my mind, this right here is a leadership activity. I have reached lives I have never known, inspired people with my words to be more than they were before reading my stories, and that to me is a leader.
It reminded me of how much this blog and all my readers have meant to me over the years and I realized that at one of the greatest points in the story – I left. I went elsewhere and was hardly there too. It’s time I remedy this and finish this story, you all deserve nothing less.
So pull up a chair and settle in, because there will be more blog posts to come over the next few months as we count down to the first day of school – August 25, 2014.
I have enjoyed this chakra meditation video very much over the last few months. It has a nice grounding effect and is quite relaxing.
Each day Jeremy and I do some combination of between 2-4 meditations spread throughout the day. It is part of the Gupta Amygdala Retraining Technique we have been doing and it helps immensely. Though the program starts you off with guided meditations of their own and cd’s to help you get started, we’ve taken it beyond those to now encompassing other meditation styles too.
Sometimes we skip the afternoon meditation in favor of a walk in the park or around our semi-rural neighborhood. This also seems just as relaxing and really depends on the day as to which we do.
Over the last several months of this program I have had a lot of time to think. Originally I was unsure as to when I would share with my reading community that I was doing the Gupta program, as it is a bit alternative and honestly, I wasn’t ready to face people judging me or how I choose to heal myself. Sad that even with all I’ve been through from these illnesses, there are those people out there who will harshly judge anyone who dares to break their own boundaries by becoming well.
Unfortunately, I did indeed face some negative criticism and a fair bit of what I felt to be an irrational anger towards me for not sharing on my blog all the intimate and private details of my life. As though somehow by denying this person those details, I am not only standing in the way of their own healing, but outright doing them harm.
I hate to admit it, but even despite finding their position to have been in the minority it did take away some of my enthusiasm for sharing this healing journey with you, my readers and friends. At this same time in life, I found myself to be going into a bit of a downturn in health because of our cat, Tashi, waking us multiple times a night and causing enormous difficulties. I love that cat, but she knocked down a considerable part of my health for the better part of four full months. All in all, as you may have noticed, I haven’t been posting very much for sometime now.
But that’s about to change… just not here.
Now I’m bouncing back quickly, more quickly than I had even dared to hope! With this gigantic boost in health is also the same boost in motivation to get a move on life. Jeremy and I are going to see about moving to Colorado, sooner rather than later, and start the process of getting back to school through the work training programs available to us.
Jeremy and I started a new blog for us to share, A Thousand Miles, where we will detail out more of our adventures while trying to find enough money to make the move. Being on Social Security Disability and food stamps doesn’t leave much money to try and save up for a big expense, and being on an island means big expense if you want to move off it. Plane fare alone starts around $1200! If we actually want to take with us anything besides carry-on luggage, such as shipping our computers to Colorado or blankets, well the costs skyrocket.
Life is full of challenges and as any who’ve read my blog here for very long knows, we take each challenge and overcome them. It’s all just a matter of time.
I’ve been down and out of life for the last couple of months, mostly because Tashi has been waking us up multiple times a night since mid-February. She’s a wonderful cat in all other ways, but sadly she has trouble with being afraid of things in our home environment which we have zero control over.
The main trigger for her nightly wake-ups seems to be our neighbor’s voice coming in through our windows at all hours of the night. I don’t blame the neighbor, she works until midnight and we knew that before moving in. Everything is at a normal speaking volume, she’s just awake much of the night. We’ve worked far too many lousy jobs that require that sort of shift to complain about someone else who’s working that shift and simply unwinding at night by chatting with their boyfriend.
And so we’ve found Tashi a new home. It’s a good home and she will be moving there at the end of this week. There are 3 other cats and a dog, along with some nice folks. A much bigger home, more windows for her, and most importantly – neighbors who’s windows are much further than 5 feet away.
I’ll be very sorry to see her go. I haven’t posted much about her here, but she’s been a real highlight in our lives these last 6 months. Were it not for this constant lack of sleep and what it’s done to our health (a full stop on our healing progress for CFS and some regression), it would be a great joy to keep her with us.
However it seems to have come down to staying tired and feeling useless in life or keeping a wonderful cat – oddly it was a hard choice. But then being tired and feeling useless is actually what most of life felt like since becoming ill in 2001 – it’s only recently begun to change at the end of last year so I’m not as familiar with what that feels like anymore.
What I do remember of December (2012) and January (2013) was a great deal of delight in feeling my energy coming up, actually being able to see and feel life returning to a more normal picture, and being happy that my existence isn’t dictated solely by feelings of Chronic Fatigue Syndrome and Multiple Chemical Sensitives. Thankfully, I’m still seeing MCS improvements, even just yesterday going into a store (Costco) that we had to avoid in the past like the plague due to all the odors and such. Now it was just as I remembered it from when I went as a kid with my mom on shopping day – everything smelled just the same, not overwhelming or frightening. Life with MCS really is coming to a close and it’s both a brilliant and wonderful thing.
I know this can happen with CFS too and unfortunately its all too clear that right now that means as best of sleep as we can manage so our nervous systems can calm down instead of being jarred awake several times a night. Truly, Tashi is going to a great home with one of the worker’s at the cat sanctuary we adopted her from – actually the woman who helped us pick her out. The woman had always wanted Tashi, seemed a little sad to see her go, but had not wanted to make the commitment before. She’s had a change of mind now that she’s seen just how wonderful and loving Tashi is as a house cat – they’ll do well together I think.
Hopefully in a few weeks time Jeremy and I will be seeing more energy again. Neither of us can hardly wait for the adventures on our horizon and have lots of motivation to make them happen. Brighter days should be coming our way, even if they are a little more lonely without my dear Tashi.
Sorry for the long delay in posts. The process of finding safe housing is proving to be most difficult and has caused a marked decline in health. Jeremy and I are making it by as always with a smile in our hearts and hope in our eyes. With some luck, we’ll find a new place to live soon that is a healing environment and with considerably less stress than our current apartment.
Sundog Tales will most certainly be continuing just as soon as I’ve the oomph for more adventures! Hugs to all! Lisa
I could not have imagined a winter as warm as this. Today has felt more like summer than it has winter. Around Christmas we had 3 weeks of Autumn-like weather – seems that was our winter!
Along with the warm weather is more air pollution in the winter from VOG – volcanic gasses which are heavy in sulfur. They tend to linger at times due to lower Trade Winds and cause the air to feel heavier, more polluted. How polluted? Well, I’d take VOG any day over all the wood smoke we’d have this time of year in Washington. Not to mention the presto logs – those things were toxic to be stuck downwind in their smoke! On the other hand, we are more sluggish on VOG days and it can cause headaches at night for me.
Sunshine – we are in the midst of a lovely period of sunny weather. Weeks of it even!
I remember in Washington we had two warm winters when the winds came up from Hawaii bringing sunshine and zero snow. We always daydreamed about how wonderful it would be to live someplace where it was always that warm – now that I’m here I must say it’s a fair bit warmer than I would have believed possible!
T-shirts and shorts are the norm and still you’ll find yourself a bit hot by noon. I love it!
In fact, I love it so much that I did something today which exemplifies winter in Hawaii better than anything else I could say at this point.
I went skinny dipping in the ocean!
It’s been years since I last stripped off my clothes and hopped into a body of water. Doing so today felt like gaining back a small part of myself which was lost when illness struck.
I may still be tired and sick, but I can swim naked in the ocean with the warm sun upon me like a younger me once enjoyed.
That makes me happy.